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English
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Published:
2015-03-02
Completed:
2015-03-02
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20,571
Chapters:
4/4
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14
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On the 5th day of March

Chapter 4: EPILOGUE

Chapter Text

Jack sits on the pier, letting his feet dangle in the water. Jason and he have been together a year this month, and they have decided to combine their anniversary with a visit to Jason’s family in Texas. Kate is minding the shop, along with students eager to earn some money over the summer, so that both Jack and Jason can take two weeks off. They spend the first week with Jason’s family, and the other they will spend at a hotel, focusing only on each other.

“Here,” Jason says, and startles Jack. He hadn’t heard him coming, being caught up in his own thoughts.

They have been through quite a journey. It’s been ups and downs.

“Thank you,” he says and grabs the cup Jason holds out to him. There are no milky coffee drinks with fancy names, just him, Jason and pure black coffee in an old thermos.

“What are you thinking about?” Jason asks, and takes a sip of his coffee.

Telling Jason about CVS was one thing, he was glad it was out there. But hearing it and living it is two different things. They had a few fights until Jack was able to explain as well as he could about how fatigued he gets when he’s cycling. If there have been enough episodes, he starts having fatigue even between the episodes. Other symptoms may also bleed into the so-called symptom-free periods of a CVS cycle.

In the beginning, Jason was very careful not to hurt Jack when he got frustrated, but even Jason isn’t a saint. He gets annoyed as well, and when he does, he doesn’t always mind his words. And Jack can be a bit touchy about this subject. It took them at least five fights until they realized they needed a talk to clear things up.

“You need to let me be angry, too,” Jason had said one day when Jack was tired from throwing up all day, and Jason was tired from covering for him at work.

“But you said you aren’t angry at me for being sick. Do you think I want this?”

“I’m not angry at you,” Jason had said, “I’m angry at CVS. I’m angry at what it does to you, and I am angry at what it does to me, because I am the one who's in a relationship with you. But it doesn’t change the fact that I still love you just as much. I love you, I just hate CVS.”

And Jack hadn’t understood until that day that Jason also had the need to be angry, some days. He too has his days when he is bitter that this fucks up their plans over and over. And he hadn’t understood that until he was able to separate his own identity from this illness. He wasn’t giving Jason the room he needed to be angry. He’s still working on it. It’s getting better, but they still have their days when they fight about this.

 “Are you happy?” Jack asks.

“Yeah,” Jason smiles and pulls Jack closer.

“Thank you,” Jack says, and gives Jason a peck on the cheek.

“What for?”

“For being so great. For covering for me all the time at work. I feel like the worst kind of employee. Especially April and May, that was bad.”

“I didn’t do it for my employee,” he says.

“What?”

“Covering your hours,” Jason says and puts down his coffee. He grabs Jack’s hand and plays with his fingers. “Do you think you are the only one allowed to work extra to help your boyfriend? I can do that, too.”

“Yeah,” Jack says, looking out on the lake and laughing at some kids splashing the water and making a lot of noise.

“So, tell me,” Jason says again, “what were you thinking about when I came down here? You looked miles away."

Jack thinks about the tough episodes he had in April and May, when he never could get the medications to work. When he was sick more and more often, and when he and Jason fought more and more. And he thinks about how the episodes suddenly stopped.

At first, he couldn’t believe his luck. Then he started to hope. Then, after 8 weeks with no vomiting, he finally dares to say the word out loud, “remission.”

 

~ THE END ~

Notes:

 

 photo CVSA_zpsejh9sudy.jpg

I wrote this story in honor of 5 March 2015, which happens to be the first ever International Cyclic Vomiting Syndrome Awareness Day.

Cyclic Vomiting Syndrome is an unexplained disorder that is most often is seen in children but can occur in all ages. The condition is characterized by recurrent, prolonged attacks of severe nausea, violent vomiting and prostration with no apparent cause. In some there is severe abdominal pain.

Many different conditions can cause recurrent vomiting. In most cases however, CVS can be differentiated from other conditions causing vomiting by three main features: paroxysmal (sudden onset), stereotypical episodes and periods of wellness in-between.

1) Paroxysmal (sudden onset): Most patents with CVS feel fairly well, until they suddenly get an attack of nausea, which usually progresses to vomiting a little later. The nausea and vomiting often start in the morning, and can even wake the patient from sleep.
2) Stereotypical episodes means that each vomiting attack resembles similar episodes they’ve had previously. Most often the attacks last between 8 and 24 hours. However, it can be as brief as 1-2 hours, and for others they can last up to days.
3) Most patients feel completely well between episodes. The period of wellness between episodes is between 1 – 3 months for most patients. However, some patients will have more frequent episodes (every 1- 3 weeks), and others will have episodes that occur rarely (every 6 – 12 months)

Patients can have many other symptoms during an attack, including listlessness, paleness, weight loss, diarrhea, high blood sugar, reduced urine output and abnormal blood chemistries.

If you want to read more about CVS you can find information here: www.cvsaonline.no.